A08 - Confidentiality, Privacy, and Anonymity in SBE Research

Confidentiality, privacy, and anonymity are three terms frequently used, and misunderstood, in SBER involving human subjects. Contributing to the confusion are changing laws and regulations affecting privacy and confidentiality, advances in technology, and shifting expectations by individuals about use of their personal information, including in research. In this session, participants will learn about these concepts and the legal and regulatory environment affecting them in SBER; identify how these concepts play out in the lifecycle of a research study; and discuss strategies for IRBs and researchers to minimize risk in SBER studies related to these concept. Session Note: This session was presented at AER20. We’re offering on-demand access during SBER21 for additional access to SBER-related content.