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2021 AER Conference

Networking Track

Advancing Justice and Equity Track

Leveraging Community and Participant Perspective to Strengthen Research

Friday, November 19, 2021
3:00 PM – 4:00 PM ET
Location: Livestreamed
Livestreaming Session Icon CSP Icon New for 2020 CIP Accredited
Increasingly HRPPs are recognizing the need to tap into the experience and expertise of the communities they may serve and listen to the perspectives of research participants, to build trust with groups that are underrepresented in research to address issues of health equity. Speakers and attendees will share the strategies their institutions use to include participant and community voices in their HRPPs, including their IRBs, and the impact of these efforts, and the tools that can be used to develop a comprehensive HRPP community engagement model focused on community stakeholder access to research, agency, and advocacy.

Learning Objectives:

  • Discuss the importance of obtaining community and research participant input and how the lack of such efforts can adversely affect health equity and social justice initiatives
  • Understand how the involvement of community perspectives and obtaining and acting on feedback from those who take part in studies improves the protection of research participants
  • Share methods of promoting the involvement of community members in the design and implementation of research and the dissemination of results (e.g., through community advisory boards, etc.)
  • Develop strategies for initial engagement with community stakeholders for the HRPP to serve as resource for education and advocacy